I really thought I was the only person cursed with this disability i kept quiet only told my wife & lived for near on 45 years with this burden . Every where I went was like a military mission only went on holidays to destinations I knew I could make it to with out going to the toilet . It stopped me boxing in my youth it virtually stopped me doing everything I really wanted to do . Then my daughter found out about my curse she done some digging & found the easy cath a small pen sized catheter & my life changed for ever I now travel all over the world thanks to this tiny object I do get the odd uti which can be a problem so I visited my new young gp who I told about my problem he smirked I asked him if he knew about it he smirked again so I got up & walked out before I done something I might regret . So I need to find a doctor who will prescribe me antibiotics to take before I go while I’m their & when I get back I think it’s called a maintenance dose & all my troubles are over . Any way the morale of this is why don’t gps no about this curse of a disability & why is it not known or recognised as a disability D johnson

Hi David
About your UTis. This is unusual. Because caths are sterile, an infection can't come form them. But it could be your hands. Have you considered an alcohol hand disinfectant to use immediately prior to handling the cath?

As for the GP. That reaction is totally unprofessional. We can send you our glossy brochure to give you credibility. Also you can state that one of our trustees and one of the Honorary Advisors are clinical psychologists; also we have been recognised by the British Medical Association. I feel you could write to the Head of Practice at the Gp surgery with a complaint that you were treated unprofessionally, citing the above. Get in touch if you want help with that.
Cheers
Andrew

Hi David
About your UTis. This is unusual. Because caths are sterile, an infection can't come form them. But it could be your hands. Have you considered an alcohol hand disinfectant to use immediately prior to handling the cath?

As for the GP. That reaction is totally unprofessional. We can send you our glossy brochure to give you credibility. Also you can state that one of our trustees and one of the Honorary Advisors are clinical psychologists; also we have been recognised by the British Medical Association. I feel you could write to the Head of Practice at the Gp surgery with a complaint that you were treated unprofessionally, citing the above. Get in touch if you want help with that.
Cheers
Andrew

Sorry to hear about your experience with the young g.p.
Take it from experience that professionals can be unprofessional and very immature!
He’s going to find in the years ahead of his career that patients are going to say far more “amusing” things than paruresis and will come across many people with this problem.
I’ve felt like punching professionals for laughing at me before due to their insensitivity.
I have given my current g.p information on paruresis and sent him emails with newspaper articles etc.
He has shared everything with the rest of the doctors at the surgery per my request to make this condition more recognised.

I don’t know if you’re still seeing the same g.p or not or if you are & have spoken to his about your a.p again since or tried seeing an alternative doctor to see if they are more mature and more respectable than the one you mention but one thing I thought you could do is print off this article that Ian had in the newspaper not so long ago and post it to your g.p with a short letter.
He should take more notice of you then and hopefully treat your problem seriously.

www.dailymail.co.uk/health/article-10365...ted-shy-bladder.html

Hi David
I think I would benifit from those small Cartheter ,never used them before,where do you get them from,
Thanks
Allan