Posted by Andrew on 21/5/2009, 5:28 pm, in reply to "First time user!"
Sally originally got in touch by email and has reproduced her message above. For the benefit of any others in a similar situation, a copy of my email reply follows.
Hi Sally
Good to hear from you :-) and very glad you have found us.
Briefly: for the info we have, go to our website www.ukpt.org.uk and select website.
There is a lot there; also on the Books page are some useful books, including one written recently by the women's co-ordinator of the USA organisation (IPA).
There is no miracle cure; you need CBT (Cognitive Behaviour Therapy) and time. The standard NHS 6 week course is not enough, but better than nothing.
Post your story on our Discussion Board; I will email the women to reply to you. In fact search through the whole board for female posters.
We run weekend workshops in London and Manchester - yes I know its along way but ......We are running a workshop in Manchester this weekend, there is already one woman on it and my wife is attending to support her. Details on the Board. We have had one woman attend who was just like you; she is not cured, but her life has improved greatly.
Do go to your GP and insists on being shown how to self-catheterise; there are infection issues for some women, but that is the lesser evil compared to 34hours lock-up. The cath fits in a container that looks like a lipstick holder. It means you can drain off at will. Only for intermittent use.
Do get back to me.
best wishes
Andrew
522
Responses
« Back to index | View thread »
Responses are not allowed!